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My journey with lymphoma

Here I will share my journey since I have learned I have Mantle Cell Lymphoma

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I THINK I SEE THE LIGHT AT THE END OF THE TUNNEL!

4/17/2016

3 Comments

 
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Over the last few weeks I have been in touch with both my doctor and the Penn doctor. I have also had a bone marrow biopsy and another colonoscopy. Both of these tests have come back with NO lymphoma!!!!  YAY!!!
The Penn Doc requested to review the PET scan images. He didn't feel the written report matched what he was seeing with me and the other test results. He reviewed my case with their team and conferred with my doctor and they have decided since both the bone marrow and colon biopsies have come back clean and what they saw (or didn't see) on the PET scan images, I do not need a stem cell transplant. We are going to pick up where we left off, with 3B of the 4-round chemo. They are also changing the dosage of the B-cycle medication they think is giving me the issues after I get home.
​I go in this Tuesday (4/19), and 4A should start on May 10th, 4B on May 31st if all goes according to plans (and I have my calendar right). June 4th will hopefully be my last day as a part-time Cooper/Camden resident!!!
After that it will be quarterly "maintenance" with Rituxan, which they say has shown to help stop or slow a recurrence.
So it does look like I can see the light at the end of the tunnel!! I appreciate all the prayers, thoughts, texts, calls, visits... They all help!!!
3 Comments
Anna mills link
4/18/2016 07:03:54 am

3rd. I am so very happy for you. Words can't say. I will continue to keep u in my prayers. So things may continue in the right direction. Keep up the good work.
All my prayer n love anna

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Butch Myers
4/18/2016 12:34:18 pm

Great to hear you are beating the nasty disease. Best of luck in the future. My prayers are with you

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Debby Atkinson
4/22/2016 09:47:30 am

Ed, So glad to hear your progress! Thinking of you and sending BIG Wishes and prayer for healing!

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    Ed Hainsworth

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