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My journey with lymphoma

Here I will share my journey since I have learned I have Mantle Cell Lymphoma

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FINALLY a call

10/3/2015

6 Comments

 
Finally got a call from the surgeon's scheduler, looks like October 13th for the biopsies... yes, plural. This date is pending both the surgeon and hematologist both being able to be there. The surgeon will take the lymph node, then the hematologist will do a bone marrow biopsy. At least I'll be asleep and get them both out of the way at one time.

I also need to see a dermatologist for a "rash" that has not changed in more than a month, despite OTC treatment.

No time for the surgery yet, depends on the hospital. Since I use a CPAP, I need to go to the hospital for the biopsies. But it makes things easier for getting the lymph node to the lab, it's in the same place. Won't know a time until the day before since it depends on when the hospital space is available.

I have to say that things move a lot quicker when the hematologist's staff gets involved.... I waited several days, left 2 messages and no call back from the scheduler. Called in to the nurse, two calls within hours for the dermatologist and surgeon! I have to say the people at MDAnderson, at Cooper and Dr. Ferber and his staff have been great!!

Thanks again for all the thoughts and prayers!!
6 Comments
Kelli
10/3/2015 11:41:31 am

Prayers Ed... We are here if u need anything !!

Reply
Yardo
10/3/2015 01:04:06 pm

Thinking about you, Captain!

Reply
Becky
10/3/2015 01:33:49 pm

Hi Ed
Been going through this with my sister in law .
Keeping u in prayer and please let me know if u need anything

Reply
Felicia
10/3/2015 03:20:53 pm

Thinking of you, hugs!

Reply
Sheryl
10/4/2015 08:40:49 am

Praying for you Ed

Reply
Dawn
10/4/2015 03:20:51 pm

I pray for you every day.

Reply



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    Ed Hainsworth

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