So it seems with the "B" cycle being so immunosuppressive, they kick my butt! I ended up back in the hospital two weekends ago due to my hemoglobin count being about 4 when it should have been above 12... I tried to get to hospital via family, but I was too lightheaded when I sat up, had to call for an ambulance. Anyone who knows me knows I REALLY needed help if I said to call EMS.
Got a ride to Virtua Vineland where they consulted my Cooper docs and started a unit of blood and I was transferred to Cooper for further treatment. I lost count of how many units of blood I got, but it was at least 7. They couldn't, and still don't know why my numbers kept dropping, even after the transfusions. Thankfully now my numbers (as of last check) are a little low, but stable. So that was a three-day stay in the hospital that I wasn't expecting, and I just laid low for the last few weeks.
This past Wednesday I had a PET scan and Thursday was a bone marrow biopsy to restage everything and see how I am responding to treatment. Copying from the PET scan report:
IMPRESSION: Since September 14, 2015:
1. Significant treatment response of diffuse hypermetabolic
adenopathy. Deauville score: 2
2. Decreased hypermetabolic activity and size of the spleen.
Deauville score: 3
Good news!!
I haven't gotten the report from the biopsy yet, that should be back by tomorrow (Tuesday).
Speaking of Tuesday, it is time for round 3A starting tomorrow. A cycles aren't so bad, but I think I'm going to become a hermit after the next B cycle!!!
Thanks to everyone who has checked in on me, said a prayer, had me in their thoughts... I feel all your love and support and it helps me keep a positive outlook and spirit!!
Be safe, be prepared and God Bless!!
Got a ride to Virtua Vineland where they consulted my Cooper docs and started a unit of blood and I was transferred to Cooper for further treatment. I lost count of how many units of blood I got, but it was at least 7. They couldn't, and still don't know why my numbers kept dropping, even after the transfusions. Thankfully now my numbers (as of last check) are a little low, but stable. So that was a three-day stay in the hospital that I wasn't expecting, and I just laid low for the last few weeks.
This past Wednesday I had a PET scan and Thursday was a bone marrow biopsy to restage everything and see how I am responding to treatment. Copying from the PET scan report:
IMPRESSION: Since September 14, 2015:
1. Significant treatment response of diffuse hypermetabolic
adenopathy. Deauville score: 2
2. Decreased hypermetabolic activity and size of the spleen.
Deauville score: 3
Good news!!
I haven't gotten the report from the biopsy yet, that should be back by tomorrow (Tuesday).
Speaking of Tuesday, it is time for round 3A starting tomorrow. A cycles aren't so bad, but I think I'm going to become a hermit after the next B cycle!!!
Thanks to everyone who has checked in on me, said a prayer, had me in their thoughts... I feel all your love and support and it helps me keep a positive outlook and spirit!!
Be safe, be prepared and God Bless!!