Round 3A went well with no unusual incidents, all as expected!
Saw Dr. Ferber Monday and it looks like some changes in my treatment plan. I am still a little confused on a few things and need to talk to the HUP Doctor again, but I'll pass on what I *think* I know:
We are going to skip the B Cycles, or at least 3B, then after 4a they are looking at harvesting stem cells (SC) in case they are needed. The B Cycle may interfere with the harvest, but again, I'll more info after talking to Dr. Svoboda (HUP) on the 31st.
My Bone Marrow Biopsy is showing 100% clear, which is another reason they are looking at taking advantage of the window for SC harvesting. Still unsure if/when a PET scan and/or colonoscopy would be done during this time frame. The restaging PET scan is still showing some lymph node activity and the spleen is still active a bit but all have greatly reduced in size.
Since I ended up in the hospital after both 1B & 2B, this change is NOT breaking my heart. The B cycle really kicks my ass and puts me down!
Currently I am getting blood tests twice a week since I my body like to use up my hemoglobin for some reason and we all want to see that I get blood as an outpatient and not having another unscheduled hospital stay. The downside is that I have to travel to Voorhees (or Camden) for the type/match test one day and be at the Short Procedure Unit by 7:30 the next morning, along with the regular test around the corner at LabCorp. Right now I am on the schedule for blood Tuesday morning, with the thinking by then I will a unit or two. I'm hoping I can get away with a trip to Voorhees Monday and NOT Camden Tuesday. Now I remember why I would be at work an hour and a half earlier than my start time at the ShipYard - to avoid the idiots on 55/42/676!!!
So I think I am "off" until April 19th, which is when I am due for 4A, but I have a call in to my doc on that. Not sure if they are looking to pull any of this up sooner, push it off to fit into HUP's schedule, or what. I guees between my visit with my doc on the 28th and HUP doc on the 31st, I'll know a lot more then!!
Thanks for all the support and I'll let y'all know what I know when I know it!!
Saw Dr. Ferber Monday and it looks like some changes in my treatment plan. I am still a little confused on a few things and need to talk to the HUP Doctor again, but I'll pass on what I *think* I know:
We are going to skip the B Cycles, or at least 3B, then after 4a they are looking at harvesting stem cells (SC) in case they are needed. The B Cycle may interfere with the harvest, but again, I'll more info after talking to Dr. Svoboda (HUP) on the 31st.
My Bone Marrow Biopsy is showing 100% clear, which is another reason they are looking at taking advantage of the window for SC harvesting. Still unsure if/when a PET scan and/or colonoscopy would be done during this time frame. The restaging PET scan is still showing some lymph node activity and the spleen is still active a bit but all have greatly reduced in size.
Since I ended up in the hospital after both 1B & 2B, this change is NOT breaking my heart. The B cycle really kicks my ass and puts me down!
Currently I am getting blood tests twice a week since I my body like to use up my hemoglobin for some reason and we all want to see that I get blood as an outpatient and not having another unscheduled hospital stay. The downside is that I have to travel to Voorhees (or Camden) for the type/match test one day and be at the Short Procedure Unit by 7:30 the next morning, along with the regular test around the corner at LabCorp. Right now I am on the schedule for blood Tuesday morning, with the thinking by then I will a unit or two. I'm hoping I can get away with a trip to Voorhees Monday and NOT Camden Tuesday. Now I remember why I would be at work an hour and a half earlier than my start time at the ShipYard - to avoid the idiots on 55/42/676!!!
So I think I am "off" until April 19th, which is when I am due for 4A, but I have a call in to my doc on that. Not sure if they are looking to pull any of this up sooner, push it off to fit into HUP's schedule, or what. I guees between my visit with my doc on the 28th and HUP doc on the 31st, I'll know a lot more then!!
Thanks for all the support and I'll let y'all know what I know when I know it!!